hoakser's blog: Double Standards Rooz's

Another Double Standards Rooz has just been added to my store...Complete with canvas and easel, this is an artistically vandalised one off custom, covered in my tags and Kidrobot scrawls..Painted with spraypaints and paint markers, he is priced at £27.99 plus postage.

ART FOR A CURE - fundraising art exhibition..

I painted this Double Standards Rooz to donate to http://mattiafagnonionlus.org/ , along with a few prints, to hopefully raise some money for a little boy called Mattia from Italy, who has Sandhoff Syndrome..

Below is a picture of that custom Rooz, along with some information about Mattia's situation..

..Here, in Italy, Mattia is the only one who suffers for Sandhoff Syndrome; so all is more difficult for us because we’re alone and it’s hard to get practical advices and to find some help from someone who know what is this disease and how to behave.Thanks to our researches, we met many families around the world and they helped us, giving us useful advices: their presence, even from afar, has been important in difficult moments. Sandhoff Syndrome and Tay-Sachs Sindrome, are metabolic illness: sick persons are subject to the absence of the main enzymes that facilitate the release of toxins, produced by brain cells; cells gradually become sick and they create imbalances in the child that become increasingly severe. In the first 8 / 9 months of age, the child show any problem; only from 10 months onwards the first signs start: alas! Sandhoff Syndrome is difficult to diagnose because only one case in a million suffer for this illness, and you can identify it only by a Prenatal genetic diagnosis.We started to notice something when Mattia was in his 6th months of life, because he was unable to crawl and sit up, all basic steps in the stages of development.
Since then, our ordeal began: worsening of vision made Mattia almost blind.Now Mattia is in his 27th months and his condition is worsening day by day, more and more: he’s not able to move, no more and only touch and hearing, among his senses, are functioning.
Since doctors have diagnosed the disease, after many suppositions of other illnesses not so serious, we are fighting against something bigger than us. Our struggle is not only against disease but also against the bureaucracy, since it is not easy to assert our rights and to receive from them the right support.
We turned Pain and Discomfort into Strength and Stubbornness: this is what we want to convey to the ones who live situations like ours, because, even though we are in 2010, disabled person are not respected as they should be.With our artistic past and a previous experience in public relations, we decided to exploit our capacity to bind and unite artists (and everyone who can help us) in one big group. We are looking for anyone who can help us with whatever available resource. Even the mere dissemination of our message is a great help.
The ultimate goal is a financial support for researches, to find a cure for Sandhoff syndrome.We would like to be an Italian and European landmark , together with "NTSAD", currently the only
association in the world applying itself to fight metabolic diseases and to aid families with similar problems.

If you can help in anyway, visit the facebook page http://www.facebook.com/MattiaAmfOnlusFagnoni or website http://mattiafagnonionlus.org/ to donate some art, to an exhibition with a good cause featuring loads of artists who have already donated works to help fight the cause..